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College Life
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College Resources for Students with Disabilities
Prospective college students with disabilities will find that many campuses are equipped with offices and services that address accessibility, accommodation, and assistive technology for a diverse range of needs. Student services offices and disability coordinators at many colleges work to make campuses inclusive environments through specialized advocacy, support, and academic services.
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College Students and Disability Law
An article on the greater demand for accommodation, which can be attributed primarily to the fact that many current college students received either an Individualized Education Program (IEP; as is required by the Individuals with Disabilities Education Act of 1990; IDEA) or a service plan (as is required by Section 504) while in elementary and secondary schools, and have become increasingly aware of their rights to accommodation while in higher education.
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Reasonable Accommodations Explained
Reasonable accommodations are modifications or adjustments to the tasks, environment or to the way things are usually done that enable individuals with disabilities to have an equal opportunity to participate in an academic program or a job (U.S. Department of Education, 2007).
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College Prep
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Accommodations for Test Takers
Many students with juvenile arthritis and related rheumatic diseases (JA) require testing accommodations in order to participate in testing programs on an equal basis with their peers. Such accommodations provide students with JA to demonstrate mastery of skills and attainment of knowledge without being limited or unfairly restricted due to the effects of a disability.
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Information on Education and Disabilities based on your location (Disability.gov)
Disability.gov is the federal government website for comprehensive information on disability programs and services in communities nationwide. The site links to more than 14,000 resources from federal, state and local government agencies; academic institutions; and nonprofit organizations.
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My College Prep Checklist
How to Prepare for College with a Chronic Disease: A Timeline of Tips for High Schoolers
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Overview: College Testing and Accommodations
One page overview on common college testing accommodations for students with juvenile arthritis and related rheumatic diseases.
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Postsecondary Institutions and Students With Disabilities
This document explains the legal obligations that postsecondary institutions have toward students with disabilities under the Americans with Disabilities Act, Section 504 of the Rehabilitation Act, and the Fair Housing Act.
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Taking Care of Your Mental Health at College
Starting college can be stressful. You may be away from home for the first time. Maybe you miss your family and friends. And it may take you time to adjust to new surroundings, new teachers, and new friends. All these things can make you feel alone, overworked, and stressed out. The following is information concerning your mental health.
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Vocational Rehabilitation Agencies State Listing
Tap into a wealth of resources related to college and employment options for people with disabilities. Vocational rehabilitation is a state-supported division of services that assists individuals with disabilities who are pursuing meaningful careers. Information provided by www.askjan.org
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College Scholarships & Financial Aid
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AbbVie Immunology Scholarship
To make educational and career goals easier to obtain, AbbVie has established the AbbVie Immunology Scholarship, open only to exceptional students living with inflammatory diseases as they pursue goals of higher education. Applicants must submit proof of being diagnosed with one of the listed inflammatory diseases, including JIA, RA, AS, PsA. Also, required is proof of enrolling in an accredited, U.S.-based institution for the 2017-18 academic year.
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American Association on Health and Disability Scholarship Program
The AAHD Scholarship Program supports students with disabilities pursuing higher education. Preference is given to students who plan to pursue undergraduate/graduate studies in the field of public health, health promotion, disability studies, to include disability policy and disability research. Royalties from the DHJO and private donations fund the AAHD Scholarship Program.
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Arthritis Foundation - Arthritis Champions Scholarship
ARTHRITIS CHAMPIONS SCHOLARSHIP
A college scholarship for students with rheumatic diseases.
The Arthritis Champions Scholarship is awarded annually to deserving students with arthritis or a related rheumatic disease who: 1) impact the arthritis community, serving as positive role models and leaders; 2) live their best life, while empowering others to do the same.
The Arthritis Champions Scholarship is generously funded by Dr. & Mrs. Walter J. Winterhoff and Dr. Smriti Bardhan.
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California Association for Post-Secondary Education and Disability
CAPED is a professional association of faculty, staff and students, serving students with disabilities at California's institutions of higher education. They sponsor several scholarships.
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College Funding for Students with Disabilities (University of Washington)
A general overview of available funding types for students applying to college.
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Council for Exceptional Children Student Awards and Scholarships
The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving the educational success of individuals with disabilities and/or gifts and talents. The CEC Student Awards and Scholarships recognize outstanding student members and chapter advisors who make outstanding contributions to CEC and to exceptional children. (You must become a CEC member to apply for a scholarship.)
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Disabled Scholarship Opportunities (College Scholarships)
This site lists an array of funding opportunities for people with disabilities.
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Fastweb: free scholarship matching service
Fastweb is the premier online resource for paying and preparing for college. Fastweb members are matched to relevant scholarship opportunities completely free of charge. With roughly 1.5 million scholarships worth more than $3.4 billion, there are scholarships for every student’s educational goals, activities and interests.
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FinAid | Scholarships
On this page, you'll find information about scholarships and fellowships for students with disabilities.
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Gina M. Finzi Memorial Student Summer Fellowship Program (Lupus Foundation of America)
The purpose of this program is to foster an interest among students in the areas of basic, clinical, translational, epidemiological, or behavioral research relevant to lupus under the sponsorship and supervision of an established, tenure-track Principal Investigator who directs a laboratory dedicated at least in part to the investigation of lupus at a U.S. academic, medical, or research institution.
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HEATH Resource Center
HEATH is a national clearinghouse on postsecondary education for individuals with disabilities. Its annual publication on financial aid is available to download at their website
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"Innovation in Motion" Scholarship Program (Spin Life)
The annual SpinLife Innovation in Motion Scholarship program is designed to aid college students in their academic endeavors. The annual program will provide one $500 scholarship and is open to students who are manual or power wheelchair users enrolled at an accredited 4-year institution.
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Lupus Inspiration Foundation for Excellence (L.I.F.E.) Scholarship
The Lupus Inspiration Foundation for Excellence (L.I.F.E) realizes the obstacles a student with Lupus faces, and was created to help these students achieve their academic goals by providing financial and educational assistance.
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Mays Mission Scholarships for People with Disabilities
Mays Mission offers scholarships to deserving individuals with physical and/or mental disabilities. To qualify for a Mission scholarship one must be able to document a significant disability, score of 18 or better on the A.C.T or 870 on S.A.T., be enrolled in a four-year study program (under-graduate only) working toward a baccalaureate degree and provide proof of enrollment.
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Scholarships and Financial Aid for Students with Disabilities
From www.affordablecolleges.com, here is a list of scholarships for students with disabilities.
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Scholarships for Survivors (Patient Advocate Foundation)
The purpose of this scholarship program is to provide support to individuals, under the age of 25, who have been diagnosed with or treated for cancer and/or a chronic/life threatening disease within the past five years.
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SMART Scholar
SMART Scholar is a scholarship search engine to help you find the perfect scholarship for your needs.
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The Andre Sobel River of Life Foundation Award
Aimed at children, teens, and young adults between the ages of 12-21 who are survivors of pediatric cancer or another life-threatening illness. Apply for the Andre Sobel Award and reflect on your journey with illness. Tell them your story so that others may find comfort, support, guidance – and even humor – from your experience. The first prize winner receives $5,000 to use in any way he or she wishes, perhaps to pursue a cherished dream not possible during illness.
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Communication: Your Doctor & Healthcare Team
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Communication: Your Friends & Family
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Coping & Emotional Well-being
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Chronic Illness and Teenagers - What Parents Can Do
A parent’s role in a teen’s adjustment to his or her illness is critical. In addition to the health and medical care a parent helps provide, there are some important efforts parents can make to ensure their child’s adjustment to their illness. These efforts can go a long way in helping teens, and their parents, carry on through the challenges of illness.
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Dealing with a Health Condition (TeensHealth)
Learn about some of the challenges of living as a teen with a chronic disease and ways to deal with these ups and downs.
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Parent's Guide to Building Resilience (American Psychological Association)
A guide for parents to help children manage stress, depression and anxiety through building resilience — the ability to adapt well to adversity, trauma, tragedy, threats, and stress.
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Parents: How to Help Your Child Cope With the Ups and Downs of School (Arthritis Foundation)
How to find the resources you need to help your child cope with juvenile arthritis at school.
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Parents: Stop Bullying (stopbullying.gov)
Parents play a key role in preventing and responding to bullying. Learn about what bullying is, how to recognize the warning signs of this problem, and how to talk to your child about it.
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Teen's Guide to Building Resilience (American Psychological Association)
10 tips for teens on how to build resilience — the ability to adapt well in the face of stress, tragedy, and chronic disease.
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Teens: Stop Bullying (stopbullying.gov)
Bullying stops us from being who we want to be, and prevents us from expressing ourselves freely, and might even make us feel unsafe. If you are bullied, say something! If you are bullying, it’s not cool!
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Employment & Careers
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Find an Adult Rheumatologist
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Health Insurance
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Do You Understand Insurance? (Illinois Healthcare Transition Project)
Information about insurance benefits, how to contact your insurance company, how to keep track of insurance information and how to find insurance. (Warning - some of the health insurance resources are only for residents of Illinois, so check the link before you click!)
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Getting Covered if You're Under 30
If you’re under 30, you can get health coverage a few different ways, some designed specifically for you. With a range of plan types and costs, it’s not hard to find insurance that works for you.
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Health Insurance Basics
Premiums, co-pays, deductibles, in-network, out-of-network — welcome to the world of health insurance.
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Young Adult Guide to Health Insurance
Learn about different health insurance coverage options for young adults
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Health Summary: Get Organized
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3-sentence health summary (Sick Kids)
How to create and use your own 3-sentence health summary.
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Create a Customized Electronic Medical Passport (Sick Kids)
MyHealth Passport is a customized, wallet-size card that gives you instant access to your pediatric medical information. It can be used when you go to a new doctor, visit an emergency room, etc. If you don't see your disease listed (JIA is not here yet), use the "Generic Passport."
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How to Create a Teen Care Notebook (Seattle Children's Hospital)
If you are a teen that is beginning to take a more active role in your own health, check out the Teen Care Notebook. This is a modified version of the Care Notebook for Parents and only includes the things a teen might need. It is a great way to stay on top of things and organize information about your health condition and treatments in one place. You can also use it to share information with your parents, doctors, nurses, and other health care professionals.
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Parents: How to build a Care Notebook for your child or teen (Seattle Children's Hospital)
A Care Notebook is a tool that can help you organize important information about your child or teen. Bring the notebook to appointments and meetings, so you can easily share information with doctors, therapists, and school or child care. staff.
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Planning and Record Keeping (Seattle Children's Hospital)
Tips and tools to help teens or parents or caregivers of children and teens with special health care needs to plan, organize, coordinate, and keep track of everything.
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Medications
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Nutrition
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Arthritis and Food
Although there is no diet cure for arthritis, certain foods have been shown to fight inflammation, strengthen bones and boost the immune system. Adding these foods to your balanced diet may help ease the symptoms of your arthritis.
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How to Eat Healthy (Fitness.gov)
Eight healthy eating goals, tips for balancing calories to manage weight, food safely information.
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Sodium Girl
Tips and recipes for following a low-salt diet, great for anyone who has kidney disease or takes prednisone.
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The Nutrition Source (Harvard School of Public Health)
Clear tips for healthy eating.
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Reproductive Health
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Arthritis Medications in Pregnancy: What's Safe, What's Not (Arthritis Foundation)
Find out which medications are OK to take when you are pregnant, planning to become pregnant or breastfeeding.
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Bedsider
Bedsider.org is an online birth control support network for women 18-29 operated by The National Campaign to Prevent Teen and Unplanned Pregnancy, a private non-profit organization. Its goal is to help women find the method of birth control that’s right for them and learn how to use it consistently and effectively.
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Parent and Guardian Resources: Help your teen make healthy choices about sex (Centers for Disease Control and Prevention)
Links to resources designed to help parents talk with their teens about healthy sexuality.
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Planned Parenthood Info for Parents
Information for parents on parent-teen relationships, talking with kids about sexuality, puberty, and much more.
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Planned Parenthood Info for Teens
Excellent website with information for teens on sexuality, sexual health, relationships and pregnancy. You can also chat live with a health educator and post questions anonymously.
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Women's Health and Reproductive issues with Lupus
As a woman with lupus, it is important to work with your doctor to monitor your reproductive health. However, the most important reproductive health issues for you to consider will change as you move through life.
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Stress Management
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Transition Overviews & Guides
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Guía de Transición del Cuidado de la Salud para Jóvenes Mayores de Edad
Este libro se trata de Ud. y su vida...quien es
Ud. ahora y lo que quiere hacer en el futuro.
También incluye cierta información y actividades
que le ayudarán a entender lo que signifi ca estar
legalmente a cargo de su cuidado de salud, y a ser activo, saludable, y poder hacer más de las cosas que quiere ahora y en el futuro.
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Health Care Transition Guide for Young Adults (HC Transition)
This book is about you and your life...who you are
now and what you want to do in the future. It also
includes some information and gives you some
activities to do that will help you understand what
it means to be legally in charge of your health care, and help you be active, healthy and able to do more of the things you want to do now and in the future.
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The Youthhood
The Youthhood Web site is a dynamic, curriculum-based tool that can help young adults plan for life after high school.
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Transition to Adulthood: An introduction for parents (Illinois Healthcare Transition Project)
Transition means changing from one thing to another, such as changing from a teen to an adult. Every teen must plan for transition. For youth with special health care needs, transition planning may take more time. This handout describes ways that parents can help their teens to become more independent.
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Transition to Adulthood (Illinois Healthcare Transition Project)
What is transition? Transition means changing from one thing to another, such as changing from a teen to an adult. You will learn, grow and change in lots of different ways as you become an adult.
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Transition Tools & Checklists
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Transition Videos: Real Stories
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